Find out what The 33 News Team is really thinking
9:35PM | April 6, 2010 | comments: 0

The most common distorder you've never heard of

Neurofribromatosis strikes 1 in every 3,000 or 4,000 people worldwide. It's an inherited disorder in which nerve tissue tumors form in the skin, brain and spinal cord. It can also cause learning disabilities and disfigurement.

We met a mother who lost her 15 year old daughter to NF five years ago. She didn't know she had it until her daughter was diagnosed with it. A doctor we interviewed said that most newly diagnosed patients have never heard of NF.

There is no cure but they are working hard to find one, for that they need research and for research they need money. There is a way to help or simply learn more if you like. Simply click here http://www.the33tv.com/news/links/ and look for Children's Tumor Foundation.

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